State MND Association services

The MND Info Line is a phone-based source of information provided by staff who can help with understanding MND and how to manage life with the disease. The line is available Australia wide.

Call the MND Info Line on:

• 1800 777 175
• Monday to Friday 9am to 4.30pm.

The friendly staff can provide people living with MND, their carers, families and friends, health professionals and service providers with guidance and information about:

• MND
• the MND association services
• other supportive community services, programs and packages
• MND education sessions
• MND resources and literature
• MND learning / peer support events
• how to access assistive technology from the MND association 
• support groups, and
• supports for carers.

The MND associations employ MND advisors who are usually professionals with a health or disability related qualification. MND Advisors provide specialist information and support to people living with MND. Support is delivered through home visits, phone contact, email and other technology for those living in remote areas and attendance at specialised MND clinics and support groups.

The MND advisors act as both a guide and support person for people with MND and their family.

MND advisors can:

• provide up to date and accurate information about MND to people with MND, their carers, families, health professionals and service providers 
• facilitate access to local multi-disciplinary health care teams and help to smooth their client’s access to health services
• support clients to navigate their local support services and help with referral to the right service at the right time 
• facilitate access to a wide range of aids and equipment
• support clients 65 years and older to navigate the My Aged Care System, and
• support clients under 65 years to prepare for their NDIS plan.

Support coordinators work with MND clients of MND Associations who are NDIS participants (under 65 years) and assist them with putting their National Disability Insurance Scheme (NDIS) plan into action. Coordinators have knowledge and expertise in organising support for people living with motor neurone disease (MND).

Your support coordinator or coordinator of supports (COS) works with you to:

• conduct a needs assessment and support you in carefully setting up your plan
• ensure your plan runs smoothly
• think ahead to look for potential gaps or improvements in your plan
• build your awareness about what services are available and can help, and
• support negotiations with government staff about changes you may want with your plan.

MND support coordinators are funded via your NDIS plan, but they are employed by your MND association and therefore have specialist MND knowledge and experience.

Some associations employ occupational therapists (OTs). If your state association doesn’t employ an OT in your state they will help you to access OT services via a service local to you.

OTs support people to be as independent as possible and find ways to support their day to day activities as their abilities change. OTs can assist with a range of things like:

• assessing the home environment to determine if home modifications are required, and if they are, what would work best
• assessing an individual's abilities for activities of daily living and work to find way to support these activities
• prescribing safe and suitable assistive technology (aids and equipment)
• helping with accessing assistive technology funded through the NDIS, Aged Care, state government programs or the MND association, and  
• setting up equipment and training people how to use it.

People with MND often require special aids and equipment (also known as assistive technology or AT) to support their daily activities. AT can include walking frames, electric wheelchairs, beds, hoists, voice amplifiers, computer systems and other devices for helping to better manage MND, as well as improve quality of life, communication, carer safety and independence.

The MND Associations help clients with MND to access the AT they need, when they need it. Your needs will change as MND progresses, and you're likely to find ways of using AT for managing life with the disease.

OTs help to find the most useful equipment by carefully assessing a person’s needs, and then prescribing safe and effective AT to best support their daily living.

MND Associations can help you to access OT services near you. You can also access assistive technology from the MND Associations. The Associations have tried and tested AT available for loan, at little or no direct cost to the person with MND. Call your MND Association to learn more.

MND support groups provide a safe and friendly place to meet and talk with people with lived experience of MND.

Support groups can help reduce feelings of isolation and provide a network of people who support and learn from each other. There are MND support groups available in most states and territories.

Groups usually meet regularly. Sometimes groups have a guest speaker, or simply provide an opportunity to talk with others going through a similar experience. Normally there is a person who coordinates a group. Your MND Association can help direct you to a group coordinator or your local support group.

MND Queensland
1/89 Factory Road, Oxley QLD 4075
Post: PO Box 470, Inala QLD 4077
T: 1800 777 175 or (07) 3372 9004
E: info@mndaq.org.au
www.mndaq.org.au
 

MND New South Wales    
Building 4, Gladesville Hospital, Victoria Road, Gladesville NSW 2111
Post: Locked Bag 5005, Gladesville NSW 1675
T: 1800 777 175 or (02) 8877 0999
E: infoline@mndnsw.org.au
www.mndnsw.org.au

ACT and NT client services via MND NSW
 

MND Victoria     
265 Canterbury Rd, Canterbury Vic 3126
Post: PO Box 23, Canterbury 3126
T: 1800 777 175 or (03) 9830 2122
E: info@mnd.asn.au
www.mnd.asn.au

MND Tasmania (client services via MND Victoria)
Post: PO Box 379, Sandy Bay TAS 7006
T: 1800 777 175
E: info@mndatas.asn.au
www.mndatas.asn.au

MND South Australia    
66 Hughes Street, Mile End SA 5031
Post: PO Box 2087 Hilton Plaza SA 5033
T:1800 777 175 or (08) 8234 8448
E: admin@mndsa.org.au    
www.mndsa.org.au
 

MND Western Australia    
Unit 1, 184 Raleigh Street, Carlisle WA 6101
Post: as above
T: 1800 777 175 or (08) 6186 4133
E: admin@mndawa.asn.au
www.mndawa.asn.au