MNDA Logo
  • About
  • Contact
MNDA Logo MNDA Logo
  • Information
    Information
    MND Connect provides resources, information and service linkage for people living with MND, their carers and family, as well as the health professionals and services providers who support them to live well.
    View all
    • About MND
    • Find services and support
    • Living with MND
    • Carers, family and friends
    • For health professionals
    • Information resources
    View all
  • Research
    Research
    MND Australia's research grants program supports high-quality MND research to discover the causes, improve care and find treatments and ultimately a cure for MND.
    View all
    • Our research grants program
    • Clinical trials in Australia
    • Support MND research
    • MiNDAUS Registry
    • Research statistics
    • MND Research Collective
    View all
  • Advocacy
    Advocacy
    On behalf of people living with MND throughout Australia, and our state member Associations, MND Australia advocates to improve the lives of people impacted by MND.
    View all
    • Our advocacy priorities
    • Advocate for change
    • Government submissions
    • Parliamentary Friends of MND
    • Every Moment Matters
    View all
  • Get Involved
    Get involved
    Find out how you can take part in advancing MND research and care in Australia. Through your support, we can work to improve the lives of those living with MND and drive forward research towards a cure.
    View all
    • The National MND Lived Experience Network
    • National MND Conference 2026
    • Advocate for change
    • MND Community Survey 2025
    • Support MND Australia
    View all
  • News & Stories
    News, stories & media
    Find out about the latest news and developments in motor neurone disease and read personal stories from people impacted by MND.
    View all
    • News
    • Stories
    • Research news
    • Media releases
    View all
  • Information
    Information
    MND Connect provides resources, information and service linkage for people living with MND, their carers and family, as well as the health professionals and services providers who support them to live well.
    View all
    • About MND
    • Find services and support
    • Living with MND
    • Carers, family and friends
    • For health professionals
    • Information resources
    View all
  • Research
    Research
    MND Australia's research grants program supports high-quality MND research to discover the causes, improve care and find treatments and ultimately a cure for MND.
    View all
    • Our research grants program
    • Clinical trials in Australia
    • Support MND research
    • MiNDAUS Registry
    • Research statistics
    • MND Research Collective
    View all
  • Advocacy
    Advocacy
    On behalf of people living with MND throughout Australia, and our state member Associations, MND Australia advocates to improve the lives of people impacted by MND.
    View all
    • Our advocacy priorities
    • Advocate for change
    • Government submissions
    • Parliamentary Friends of MND
    • Every Moment Matters
    View all
  • Get Involved
    Get involved
    Find out how you can take part in advancing MND research and care in Australia. Through your support, we can work to improve the lives of those living with MND and drive forward research towards a cure.
    View all
    • The National MND Lived Experience Network
    • National MND Conference 2026
    • Advocate for change
    • MND Community Survey 2025
    • Support MND Australia
    View all
  • News & Stories
    News, stories & media
    Find out about the latest news and developments in motor neurone disease and read personal stories from people impacted by MND.
    View all
    • News
    • Stories
    • Research news
    • Media releases
    View all
  • About
  • Contact
Get support
Call the number below to get directly connected to the local MND association in your State
Australia Map
1800 777 175
9am to 4:30pm Monday to Friday

(MND services in the ACT are provided by MND NSW)

Building 4, Gladesville Hospital, Victoria Road, Gladesville NSW 2111

Post: Locked Bag 5005,Gladesville NSW 1675

T: 1800 777 175

Visit website Send a message

66 Hughes Street, Mile End SA 5031

Post: PO Box 2087 Hilton Plaza SA 5033

T: 1800 777 175

Visit website Send a message

Building 4, Gladesville Hospital,Victoria Road, Gladesville NSW 2111

Post: Locked Bag 5005,Gladesville NSW 1675

T: 1800 777 175

Visit website Send a message

(MND services in Tasmania are provided by MND Victoria)

265 Canterbury Rd, Canterbury Vic 3126

Post: PO Box 23, Canterbury 3126

T: 1800 777 175

Visit website Send a message

(MND services in the NT are provided by MND NSW)

Building 4, Gladesville Hospital, Victoria Road, Gladesville NSW 2111

Post: Locked Bag 5005, Gladesville NSW 1675

T: 1800 777 175

Visit website Send a message

265 Canterbury Rd, Canterbury Vic 3126

Post: PO Box 23, Canterbury 3126

T: 1800 777 175

Visit website Send a message

1/89 Factory Road, Oxley QLD 4075

Post: PO Box 470, Inala QLD 4077

T: 1800 777 175

Visit website Send a message

Unit 1, 184 Raleigh Street, Carlisle WA 6101

Post: as above

T: 1800 777 175

Visit website Send a message

Search

Donate
  • Information & Support
  • Living with MND

Living with MND

In this section
  • Managing day to day
  • Breathing and MND
  • Medication for MND
  • Cognition thinking and behaviour
  • Eating drinking and swallowing
  • Exercise and MND
  • Employment and MND
  • Equipment and home modifications
  • Maintaining weight & nutrition
  • Pain and MND
  • Planning ahead & talking about end of life
  • Planning for emergency care
  • Gaming & entertainment
  • Sexuality and intimacy
  • Friends and relationships
  • Speech and communication
  • Caring for your mental health
  • Managing day to day
  • Breathing and MND
  • Medication for MND
  • Cognition thinking and behaviour
  • Eating drinking and swallowing
  • Exercise and MND
  • Employment and MND
  • Equipment and home modifications
  • Maintaining weight & nutrition
  • Pain and MND
  • Planning ahead & talking about end of life
  • Planning for emergency care
  • Gaming & entertainment
  • Sexuality and intimacy
  • Friends and relationships
  • Speech and communication
  • Caring for your mental health

Life changes after an MND diagnosis.

Learning to live with the disease is incredibly challenging. There is a lot to consider. It can be hard to take it all in, but we are here to support you on your journey.

In this section, you’ll find information about managing the symptoms of MND, adjusting your daily routine with the help of equipment and other supports, making decisions about your care, and planning ahead.

We hope the information and resources here will help prepare you so you can live as well as possible for as long as possible. 

Keep in touch

Get the latest news about MND research,
care & advocacy right in your inbox.

MND Logo

Information for

  • People living with MND
  • Family members and carers
  • Health professionals
  • Supporting MND Australia

Popular links

  • What is MND?
  • Types of MND
  • MND research
  • Find services and support
  • MND Lived Experience Network
MND Parnter Logos
  • Contact Us
  • Privacy Policy
  • Whistleblower policy
  • Terms & conditions
  • Site map

©MND Australia 2025

MND Australia would like to advise Aboriginal and Torres Strait Islander users that this website may contain images or names of deceased persons.

Link copied to clipboard