Our advocacy priorities

2. Maintain the NDIS Priority Eligibility Decision Pathway 

NDIS Priority Eligibility Decision Pathway that fast tracks people with MND to gain access to the NDIS and maintain the dedicated team of planners with MND expertise.

• The NDIS Priority Eligibility Decision pathway enables a decision within two to five business days. 
• Dedicated NDIA subject matter expert planners trained by MND State Associations are key to ensuring people living with MND gain access to appropriate NDIS funding, services and supports.
• This specialised fast-tracked access ensures people with MND are gaining access to services and supports that are key to someone living with this rapidly changing, progressive disease that creates high levels of life-limiting disabilities.

4. Fund Aged Care supports to comparable levels to the NDIS

• Fund disability supports at a comparable level to the NDIS to ensure people living with MND aged 65 years and over receive the supports they need for such a complex and progressive disease.
• The Aged Care system was not built for someone with a rapidly progressing condition or disability. Funding needs to be equal to the NDIS to ensure guaranteed supports for people living with MND aged 65 and over.
• The difference between the highest-level in-home care package under the Aged Care Rules 2024 and the average NDIS package for someone living with MND (in 2024) is $194,000 annually.

Costing: $287 million a year