Meet MND Australia's board and staff, who are striving to improve the lives of everyone impacted by MND and ultimately a world free of MND.
The MND Australia board consists of an independently elected President, a nominated representative from each State MND Association board, up to three Independent Directors and the Chair of the Research Committee.
Andrew is a current Director of The Leasing Collective business (previously Urban Food Collective) which assists retailers with their property portfolios and leasing requirement on a national and international level. He is a current board member of the South Melbourne Market and is the current Chair of the Motor Neurone Disease Association of South Australia. He has lived experience with the disease, with his father having passed away at the start of 2020.
Peter has more than 15 years’ directorship and governance experience including within the “for profit” and “for purpose” sectors and as a past facilitator for the Australian Institute of Company Directors in its finance, strategy and risk programs. Peter is also a member of the Finance, Audit and Risk Management Committee for Neurological Research Australia.
Peter’s executive career included senior broad financial management and governance responsibilities across a wide spectrum of business sectors, various sized businesses and within both listed and non-listed environments. His areas of expertise include strategy development and implementation, financing, negotiation, governance, organisational risk assessments, organizational evaluation and restructuring and financial management.
Peter is a Fellow of the Australian Institute of Company Directors, a member of the Institute of Chartered Accountants Australia and New Zealand, a Fellow of the Governance Institute of Australia, and a senior member of the Australian Corporate Treasurer’s Association.
Diana has spent 25+ years as a senior executive and company director in the not-for-profit sector. An experienced CEO, she has led both not-for-profit and commercial organisations involved in agriculture and sport. Diana currently provides company secretary and governance services to several community sector organisations through her consultancy, NFP Assist, and in addition to serving as President of MND Queensland, her other voluntary roles include director/secretary of a disability charity and company secretary for an Aboriginal family legal service.
Diana has a Master of Business Law and is currently studying for a Bachelor of Laws. She is also a graduate of the Australian Institute of Company Directors and an Associate of the Governance Institute of Australia.
Samar is Perron Institute Research Chair in Palliative Care at the University of Western Australia and 2023 WA Australian of the Year. Samar adopts a public health approach and a focus on under-served population groups such as people with MND and advocates for person-centred health and social care. Her research programs on supporting family caregivers at end of life and the Public Health Model of Bereavement Support have informed policy and practice at the national and international levels. Samar is also currently the President of MND WA.
David is Professor Emeritus in the Department of Neurology at Royal Prince Alfred Hospital and University of Sydney. Previously he held Chairs of Clinical Neurophysiology from 1987 and of Neurology from 1991 at the University of New South Wales during which he was appointed Chairman of the Department of Neurology, Prince Henry and Prince of Wales Hospitals. David led one of the two research teams around which the Prince of Wales Medical Research Institute [now renamed “NeuRA”] was formed in 1991, and was Director of Clinical Research until 2002. From 2002 to 2008, he was Dean of Research for the Health Faculties at University of Sydney and from 2008-2013 Bushell Professor of Neurology at Royal Prince Alfred Hospital.
He is a Fellow of the Australian Academy of Science and of the Australian Academy of Technology and Engineering, was a member of the Executive Committee of the International Federation for 18 years, immediate past Editor of Clinical Neurophysiology, and inaugural Editor of Clinical Neurophysiology Practice. He was appointed Officer in the Order of Australia in 1999, and elevated to Companion in the Order of Australia in 2019.
Amy is a public sector professional with over 20 years experience in government, both at the Federal and State level. She has held senior positions focussed on policy, strategy, intelligence and governance in her day job and is mum to four lively kids and a Labrador in her non-paid job!
Amy likes to keep herself busy through being a member of the local ACT MND community and has been an MND NSW Board Member since 2013, where she currently serves as Vice-President.
Amy brings her lived experience to the Board, through being a carer for her mother who passed away from MND.
Tracey is Professor of Neuroscience, at the Menzies Institute for Medical Research, and Associate Dean Research for the College of Health and Medicine, University of Tasmania. She leads a group of researchers and students dedicated to using cellular and transgenic models to determine the mechanisms underlying MND, and to develop and test new therapies. Tracey is currently on the board of MND Tasmania.
Jeremy is an accomplished finance professional with extensive expertise in governance, strategy, and finance. He is a partner and CFO at IDA, a boutique private credit and investment manager. His career highlights include significant roles at Macquarie Group, where he contributed to the real estate structured finance division and later to the real estate and infrastructure funds management arm. Before joining IDA, Jeremy founded Jameson Capital, a boutique real estate investment manager. He is a Fellow of the Tax Institute.
Jeremy has been an active member of the State Council for MND Victoria since 2016 and has served as Treasurer and Chair of the Finance, Audit, Investment and Risk (FAIR) Committee since 2017.
Jeremy’s father passed away from MND at a young age.
In 2022, Peter’s life took an unexpected turn when he was diagnosed with MND. While initially confronting, this diagnosis became a catalyst for transformation. Rising above feelings of helplessness, Peter stands as a testament to the strength of the human spirit, embracing a renewed sense of purpose: to turn his personal journey into a platform for advocacy and hope. As an Ambassador for MND Australia, Peter is passionately committed to raising awareness by amplifying the voices of those affected; as well as fostering greater understanding, compassion and meaningful change around this devastating disease.
Peter is an accomplished professional with extensive experience within the private, public, and non-profit sectors; encompassing leadership, behavioural change, stakeholder engagement and governance. Peter also served with distinction in the Royal Australian Air Force for over 35 years, an experience that shaped his resilience, discipline, and deep sense of purpose.
Jane’s husband, Robert, died 10 months after his diagnosis of MND. Jane understands the intricacies of caring for someone with rapidly progressive MND, particularly within the aged care system.
Since her husband’s death, Jane has worked tirelessly via numerous initiatives, to make a difference to people living with MND and their carers. Jane is the current Chair of the MND Research Collective: Lived Experience Research Advisory Panel and is also the producer and host of the podcast Let’s Talk MND. Jane spent 20 years in the corporate world, before starting her own award-winning business.
Clare is a results oriented leader with over 20 years’ experience in leadership and advocacy across a range of sectors including health, community, infrastructure and government. Clare is driven to make Australia a better place to live and to improve the lives of Australians in her professional and personal life.
Clare comes to the role of Chief Executive of MND Australia having delivered significant policy change, millions of dollars in funding programs and greater engagement for a diverse range of organisations. She now oversees millions of dollars in research funding while supporting State Associations in service delivery to improve the lives for people with motor neurone disease, and their families and carers.
Drawing on her experience as a CEO, Chief of Staff and senior executive, Clare is driven to deliver strong results for MND Australia, working to continually improve the care and support services available for people with MND while relentlessly pursuing a cure.
Gethin Thomas has been the Executive Director, Research at MND Australia since 2019. He oversees the research grant program and manages national and international partnerships. A key aspect of this role if providing a conduit between research programs and the wider MND community through MND Australia and the affiliated State Associations. Gethin is also on the board of the International Alliance of ALS MND Associations.
Gethin has over 20 years of experience as a biomedical researcher, having published widely and secured almost $4M in research funding. He has extensive review experience across a wide range of journals as well as reviewing grants for Australian and International funding bodies. Over the last 10 years as a senior research manager, he has directed a University Research Office and served as an Associate Dean of Research. He has a deep understanding of research strategy and the research funding system from the grant preparation, application and review process through to management of funded projects at both the researcher and institutional level.
Laura joined the MND Australia team as Research Coordinator in November 2018. Together with Gethin Thomas, Laura manages MND Australia’s research grants program. Laura has a background in science and environmental law and a masters in education. She worked part time at MND NSW while studying at university. Since moving to Canberra in 2009, Laura has worked in a policy role at an industry association, undertaken committee work at Parliament House and has worked at a local publisher. Outside of work, Laura loves spending time with her three kids and getting out in the beautiful Canberra bushland for a run.
Maddie holds a Master of Project Management and a Bachelor of Communications from the University of New South Wales. She is passionate about working with not-for-profit organisations which have a social impact. Maddie’s experience extends across governance, project management, event management, marketing strategy and implementation, operations and stakeholder engagement. In her spare time, Maddie volunteers some pro-bono hours for deserving charities and spends weekends with her two dogs – usually at the beach!
Olivia joined the MND Australia team as Grants Coordinator in September 2023. Olivia has extensive grant writing, strategic planning, event and project management experience across the arts and culture, economic development, not-for-profit and local government sectors. Based on Gubbi Gubbi country in Queensland, Olivia holds a Master of Business (Arts and Cultural Management) from Deakin University and a Bachelor of Fine Arts (Visual Arts) from the Queensland University of Technology. Outside of office hours, Olivia is a busy mum to four children and enjoys getting lost in a good book.
Melissa joined MND Australia in September 2023. She is a writer, editor and communications specialist with 20 years experience within the health and medical, not-for-profit and travel sectors, including roles at Melanoma Institute Australia and Cancer Council Queensland. Melissa is the author of What Will Be Worn: A McWhirters Story, published by Transit Lounge in September 2018, and also writes essays, reviews and short stories. She has lectured and taught writing to undergraduate and postgraduate students at The University of Queensland and the Queensland University of Technology and recently completed a PhD in creative writing within the Aberdeen-Curtin Alliance program.
Melissa is based on Bundjalung country, in the Tweed region of northern New South Wales.
Julie joined MND Australia in September 2023, to design and implement our National MND Lived Experience Network. Coming from an allied health background, including coordinating a Sydney-based multidisciplinary MND Clinic for 17 years; she has extensive experience coordinating healthcare for people living with MND. Julie also has a keen interest in managing projects, in both the hospital and research setting. Julie remains actively involved in MND care research, publishing papers in peer-reviewed journals.
Morag joined MND Australia in February 2019. She has held a variety of marketing and communications roles over the last ten years, beginning in book publishing before moving into the the public heath and research sectors. Before moving to Canberra, Morag worked for a research and health promotion centre at the University of NSW, where she also completed a Master of Public Health.
Isobel joined the MND team in October 2024 as the Policy and Advocacy Manager. She has worked with not for profits and government organisations in policy, program and participation roles in the areas of Aboriginal and Torres Strait Islander health and education, rural health and mental health for more than twenty years. Isobel has a Bachelor of Community Education from the University of Canberra and has volunteered extensively in environmental restoration and seed banking in Canberra and the surrounding region.
