MND Australia
MND Info Line 1800 777 175. 9am to 4.30pm Monday to Friday.

Newly diagnosed?

Every day, an average of two Australians receive the challenging news that they have motor neurone disease or MND.

Learning you, or someone you're close to, has MND can be overwhelming. Understandably, it can take time to adjust and to make sense of the news. You may not know what to do next.

Getting the right help and information at the right time can make a big difference. Knowing what care and support there is available can help you live as well as you can with MND.

Through this website, the MND Info Line, and the network of state MND Associations, we share quality information with you about MND to help you find your way.

One of the best things you can do is talk with someone who can answer your questions, offer support and guidance. Simply call the MND Info Line on 1800 777 175 (Monday to Friday 9am to 4.30 pm) and your call will be directed to your local MND Association.

The MND Info Line staff understand MND and regularly talk to people dealing with a recent MND diagnosis. They recognise that each person’s wants and needs are unique. They are able to:

  • listen and guide you to the information and support that suits your needs
  • link you with the MND Association team near you, who can support you and your family moving forward

There is no charge for calling the MND Info Line and calls are confidential.

GPs, health professionals and service providers can also call the MND Info Line for information, advice and support.

Learn more about state MND Association services

WATCH A SHORT ANIMATION ABOUT THE MND STATE ASSOCIATIONS

Reading basic facts about MND is a good place to begin. When you feel ready, you can browse the rest of this website for more information about living day-to-day with MND.

Be mindful that MND affects everyone differently. You may find that some information here is more relevant at certain times than others.

Planning ahead, even in the early stages, can help you feel in control and reduce stress. It can be hard to talk about the future when you are living with MND. You may feel worried about what lies ahead. This is normal. Support is available.

Some MND Associations host information sessions for people recently diagnosed with MND and their family. The sessions are held online and/or in person. Sessions cover topics like MND symptom management and how to access support. Sessions are also a chance to learn from and connect with others recently diagnosed with MND.

MND Associations also run support groups and a range of information and education events throughout the year. Staff on the MND Info Line (1800 777 175) can tell you about upcoming events.

Some of the other MND supports and services include:

  • MND Clinics, which are located in most state capital cities and major centres. More information on MND Clinics, the services they provide, and contact details are available here.
  • The Australian Government provides several options to help people with MND fund their healthcare and disability supports and services. Learn more.