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In September 2019, MND experts and neurologists from around the world met in the Gold Coast to discuss ways to help improve early diagnosis of ALS/MND.

Read all about the outcomes of the meeting in our latest blog post.

Recently, researchers created the MND Patient Decision Support Tools, a collection of online information modules about assisted ventilation, gastrostomy, genetic testing and similar options for care. The tools assist people living with MND to make discussions about how they’d like to deal with the disease.

MND Australia would like to offer its sincere condolences to the Laidlaw family after the recent passing of generous donor and supporter of MND research, John Laidlaw.

Since 2015, John has funded the Betty Laidlaw MND Research Grant and the Betty Laidlaw Research Prize, a magnificent total contribution of $2,000,000. The grant and subsequent prizes awarded have been critical for funding research into finding potential treatments and better understanding the causes of MND.

After 15 years of working tirelessly to promote research into motor neurone disease (MND), Janet Nash has retired from the Motor Neurone Disease Research Institute of Australia (MNDRIA) – the research arm of MND Australia.

We had a chat with Janet about the growth and changes at MNDRIA during those years.
Five years ago the Ice Bucket Challenge swept the world and changed the landscape for MND awareness and research funding.

Jimmy Ashby, a 20 year-old and from Adelaide, rode his bicycle around the world, raising almost $33,000 for MND Australia. We spoke with Jimmy...

The MND Research Institute of Australia offers grants to attract and develop outstanding researchers at all stages of their careers. Grants range from PhD top-up grants (applications for 2019 close 31 January) to multi-year project grants when special funds are available.

Take a look at the development of researchers funded by MNDRIA at the University of Tasmania in recent years. 
Associate Professor Peter Crouch talks about the results of the phase 1 clinical trial exploring copper-ATSM as a potential treatment for MND
We talk to Jo Fowler, an MND Adviser in NSW, about what her role involves and how she is helping those living with MND, their families and carers. 
Some interesting new research on potential risk factors for ALS/MND has just been published by the team who operates the ALS Quest research questionnaire at the University of Sydney. Find out more
This week we take a look at Ms Sheer's clinical trial investigating whether specialised breathing exercises everyday slows the decline in breathing function. 
Preserving special moments with your family and friends can be a wonderful way to communicate a loving message, stories or celebrate a life well lived. Here are a few ideas.
Drs Kevin Barnham, Tony White and Paul Donnelly were working on Alzheimer's and Parkinson's disease when they had an opportunity to test copper-ATSM in an MND mouse. 
Dr Marco Morsch and his team have established a novel technique to visualise the fate of MND proteins in neurones before and after they die. 
Associate Professor Kenneth Rodgers and colleagues investigate ways in which chemicals released from blue-green algae could affect neurones. 

Dr Anne Hogden and her team are developing decision-making tools to help people living with MND make decisions about their care.
We take a look at how the money raised from the Ice Bucket Challenge in 2014 enabled the MND Research Institute of Australia (MNDRIA) to fund one of Australia's leading MND research projects. 
Join us as we take a look at some of the milestone research projects that have been funded through the MND Research Institute of Australia. 
Louise tells the story of her mother's rapid progression with MND.
On the International Day of Families we celebrate the love, commitment and bravery of families impacted by MND.
Posted 15/05/2017 at 12:45PM by MND Australia

Bill Gole MND Postdoctoral Fellow, Dr Jennifer Fifita is spurred on by eureka moments of gene discovery. 

Posted 15/05/2017 at 12:45PM by MND Australia

Meet Trevor Newby who continues to enjoy the sea breeze thanks to the assistance of his State MND Association.


Posted 15/05/2017 at 12:45PM by MND Australia

"I had a wonderful life before motor neurone disease and I have a wonderful life now," says Kirsten Harley.
Sometimes grumpy and eccentric, always generous. A loving daughter writes a touching tribute to her Dad.
Posted 8/11/2016 at 12:45PM by MND Australia

Sally Light (CEO, MND Association) and Carol Birks (CEO, MND Australia) discuss MND care, research and working together to improve the lives of people with MND. 
Posted 13/10/2016 at 8:45PM by Sue Needham

Just being there for someone who knows the end of life is imminent is a special role. My experience as carer for my husband crept up for many years before the diagnosis of MND was confirmed. 
Posted 25/09/2016 at 8:45PM by Drew Bathgate

Drew tells why he and his wife, Maureen love Busselton in WA and shares some tips to make holidaying easier.
Posted 1/09/2016 09:00AM by Karen Andrews

"​We’d known something was wrong with dad for a while ..."
Posted 8/08/2016 at 2:38:00PM by Pamela Bartlett

"I really never appreciated when I first started this position just over 1.5 years ago how important the psychological aspect of care is in relation to MND."  
Posted 20/07/2016 at 2:38:00PM by Belinda Robinson

Belinda Robinson shares her love and admiration for her hero father who lost his battle with motor neurone disease in April 2016. 
Posted 5/07/2016 at 1:52:00AM by Trevor Newby

"(MND) put pressure on my relationship to the point of my partner leaving after 4 years & eventually I was deemed homeless until a disability pension was processed & approved 4 months later."
Posted on 8/06/2016 at 4:00PM by Denise Plunkett

MND Queensland's Denise Plunkett writes about her personal journey with MND after losing her brother to the disease then helping others through her work as MND Client Service Advisor.
Posted 14/06/2016 at 6:52:00AM by Phil Brady

Phil Brady was diagnosed with motor neurone disease over 20 years ago. His experience with the aged care system has been less than ideal and here he describes the inadequacies of the system from his point of view.
Posted 27/05/2016 at 12:25:00PM by Julie Craig-Smith

Julie Craig-Smith, Education and Support Coordinator at the MND Association of Western Australia talks about their popular carer education and support program You, Me & MND.
Posted 13/05/2016 at 8:25:00PM by Anita Richter

It's National Volunteer Week and we'd like to give a huge shout out to all the volunteers who generously give their time to improve the lives of people touched by MND. With almost 20 years of experience in the MND community, Anita Richter is a most valued volunteer. Read Anita's story about why she "never wants to give up" supporting people impacted by MND.
Posted 7/05/2016 9:00:00AM by Guy Barnett

As MND Week comes to a close, Tasmanian MP and MND Ambassador, Guy Barnett encourages us to continue raising awareness and advocate for people living with MND. 
Posted 5/05/2016 at 9:00:00AM by Shyuan Ngo

Research scientist, Shyuan Ngo talks about MND research and her drive to better understand what causes motor neurone disease.
Posted 6/05/2016 at 9:00:00AM by Sarah Solomon

Occupational Therapist, Sarah Solomon shares what she loves about working with people who are living with MND.

​Posted 4/05/2016 09:00:00AM by Anne Hogden

Dr Anne Hogden shares her perspective on improving healthcare services for people living with motor neurone disease.   
Posted 3/05/2016 1:00:00PM by Jackie Chugg

Jackie was just 25 years old when she was diagnosed with motor neurone disease. Here she tells her story about living a positive life.
Posted 3/05/2016 09:00:00AM by Amy Critchley

A daughter describes how her world was turned upside down the day her Mum’s MND diagnosis was confirmed. 
Posted 2/05/2016 9:00:00AM by William Huynh

"Delivering the diagnosis of MND never gets easier," Dr William Huynh describes his role as Consultant Neurologist at the Forefront Clinic, Brain and Mind Centre, Sydney.
Posted 1/05/2016 12:00:00PM by Kirsten Harley

"Each of the 2094 Australians living with MND has a story about the personal impact of MND. I'm Kirsten and my story starts 4 years ago..."
Posted: 30/04/2016 7:30:00PM by Carol Birks 

In this short video National Executive Director of MND Australia, Carol Birks introduces MND Week, 1–7 May 2016 and our social media campaign #7DayswithMND.

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