The State MND Associations provide individualised support to people living with motor neurone disease (MND). Together with MND Australia, the state MND associations work as a network to promote best practice in MND care, and encourage and promote equitable state-based services to help people with MND and their carers live better.
For over 35 years MND Associations have been working to advance, promote and influence MND care and research with a vision of achieving a world without MND. The six state MND Associations are the only MND organisations providing direct services and support through the
National MND Support Service Model to people living with MND and their family and friends in all states and territories across Australia.
State MND Associations provide a range of services that may include all or some of the following:
- Information
- Ongoing support
- Home visits
- Assistance in accessing MND Clinics, local services, NDIS plans and aged care packages
- Coordination of NDIS supports
- Equipment or assistance in accessing equipment from government agencies
- Peer support and education programs
- Carer workshops and programs
- Support groups
- Education sessions and information for health and community care providers
- Advocacy and influencing
- Volunteers
During 2017/18 State MND Association support services provided:
- care, information and support to over 2,000 people living with MND
- support and information for over 865 people newly diagnosed with MND
- support for the families of the 560 people registered with an MND association who died
- over 5,512 items of equipment provided to people living with MND
- 4,464 home visits and over 31,000 contacts electronically
- education to over 2,000 health, disability and aged care providers
